Sunday, 2 January 2011

The Story of the Willow Tree as told by Sandy Herbert-Simpson

Artist's page on Etsy


"Blessings to you Idun.

My oldest daughters name is Willow and when we told my parents of our choice in names my father told me a story that he knew. We have Celtic ancestry so it may be a Celtic story but it also may be Dene Native from up in the north of Canada because my father spent many many years working up there ( I wish I knew its origins, sorry). I thought you would like to hear it.

The story goes that the Willow tree was once a young woman who could not bear a child, she tried and tried and always her babies would never take breath or be born at all. So sad was she that she prayed to the Great Mother for an answer. She sat on the river bank and wept for days waiting for her answer. The Great Mother came to her and told her that sometimes this is the way of the world and that is was not because of her or to punish her it just was. Well the woman could not understand this or why it must just be, so she told The Great Mother how unfair she was to be so cruel to the woman, The Great Mother replied that she was not being cruel and unfair to the young woman that many women live this truth. The woman told The Great Mother that she just could not bear this knowledge at all and that she would always be consumed with sorrow and grief for those women and herself and so the Great Mother turned her into a Willow tree to weep for all of the unborn children and the grief that their mothers have for them for eternity.

When you said you had named your daughter Willow I remembered this story and thought it was so fitting :) that she be named for the tree that stands and weeps for all of the unborn children. I hope this story helps a little.

May the Goddess always smile upon you and yours.
Sandy
Avalonschild"

Sandy - Thank you so much for sharing this with me and for giving me permission to share it on the blog!

The Angel Baby Hope Project


My angel baby Willow inspired me to start a new Facebook page called the Angel Baby Hope Project and to gather stories from those of you who have lost a baby before they drew their first breath but have received spirit communication and evidence of their existence from the great beyond. Our hope is to gather enough stories to publish a book that can be given as a gift of hope to anyone who has lost a baby through miscarriage, termination due to medical reasons or stillbirth.

Your angel watches over you and the love we have for our little ones is strong enough to bridge the gap between worlds ♥

Please share your stories on the wall and email me your full story from the point of conception to where you received evidence of life on the other side of the veil if you would like to be part of the book project.

Saturday, 1 January 2011

Grace



Grace wears black sometimes, when she wants us to grow our souls to make room for more love and compassion...

The night before we found out that Willow's heart had stopped beating, I had two dreams. In the first dream, someone had sent me a grief councelling package through the post. It was red with white hearts on and there were baby shoes inside it. Another scene of the same dream hade me lying on a table, shaking with grief, wailing like a mad person.

The day before was one of the most difficult days of my life. I knew we were losing our baby, and amidst all the grief I was taken over by a rage such as I had never known before. It was as if all the pain that every mother had felt since the dawn of time had been poured into me... and I rebelled against it with fire and blind rage. I was Lilith and Kali, and I wanted the world to burn to the ground. I allowed the fires to consume me so that I could be reborn, so that I could rise from the ashes like the phoenix.

It wasn't pretty to behold and my beloved got caught in the firestorm. I was out of control for a while and everything about me was destruction... but the rage only lasted for a few hours because I didn't try to resist or push it down.

The second dream spoke of my animal nature - the instincts that take over when someone or something threatens our offspring. In this dream, my cat was being mauled by a dog. I spotted this from my bedroom window and went outside to try to rescue my cat. The dog then turned on me and started biting me. I woke up mid attack. I instantly knew that this dream represented two aspects of my psyche at war with one another.

The cat is my feminine, instinctual self and the dog is the masculine, logical part of me. As I was faced with the choice to terminate a pregnancy that would only end in suffering the two voices inside me went something like this:

Dog: "Termination is the merciful thing to do. You will prevent much suffering. Don't be so selfish. Think of the kind of suffering these babies are put through. Think of your partner. Remember, you had already discussed the eventuality of what to do if the baby was diagnosed with T18 - don't let your emotions get in the way of doing what is right and humane."

Cat: "Fuck off. Mother Nature knows what She is doing. Stupid dog. Trust your body."

By the time of the dream, the voice of the cat had been silenced by the demise of my baby and there was nothing I could do about it. But in the end, the cat won - Mother Nature had the final word... and I didn't have to make a choice no mother should ever have to be faced with.

Thanks to these two dreams, I was prepared for the results of the final ultrasound scan.

When I woke up in the morning, I prayed for a miracle. I prayed for the decision to be taken away for us by either a miracle of healing or for the baby to go to heaven. Even as I prayed, I knew this was no 'baby soul' but an ancient teacher who had come to grace us with her presence for a spell. I also knew that there would be no healing miracle. I know what they feel like and there was none of that going on.

 Me on New Year's Eve 2010 at 14+1, hours before the final scan

As we were on the way to the hospital, I heard Willow speak. She responded to some thoughts I had about my partner, giving me a more balanced view of what was happening. I don't know how long she will be with me in this way, but I am so very grateful for her presence.

Willow herself gave us her name. This has been confirmed - twice. First my sister told me that she and her partner had decided to plant a willow tree next to a lake, unbeknownst of the fact that 'Beanie' now had a real name. I found out when I rang her up to tell her of the results of the scan. She is going to dedicate this tree to our Willow.

This morning, I found out that a FB friend of mine had only just decided to plant a willow tree too. She said she would think of our Willow when planting it.

Spirit has many ways of making itself manifest. I marvel at the syncronicity here... but I'm not surprised. This is, after all the, same baby girl who appeared to me twice in my dreams already, giving me the sweetest baby kisses... allowing me to know her love for me in a way that surpasses anything I'm able to describe in words... but maybe, if you close your eyes for a moment and allow Willow to come to you... then maybe you will feel her love too.

The past couple of weeks since the 12 week scan have been hell in so many ways, yet I feel so very graced by it all. That doesn't mean that the pain is gone... or that there isn't plenty more to come. I have yet to go to the hospital for induced labour on Monday and Wednesday next week... But Willow lives and she will never have to know pain. All she knew in my womb was unconditional love. That is all she received and all she gave. She is real, alive and I am blessed to know her. I am also blessed with three beautiful healthy children.

On top of all this, we have been showered with love and healing from so many friends. Thank you! We are all connected through a huge web of love. This is real and all that matters in the end. I wouldn't know such love, had I not known the pain that precedes it.

Another FB friend of mine sent me the poem "In the Willow Shade" by Christina Rossetti (thanks, Stephanie!):

I sat beneath a willow tree,
Where water falls and calls;
While fancies upon fancies solaced me,
Some true, and some were false.

Who set their heart upon a hope
That never comes to pass,
Droop in the end like fading heliotrope
The sun's wan looking-glass.

Who set their will upon a whim
Clung to through good and ill,
Are wrecked alike whether they sink or swim,
Or hit or miss their will.

All things are vain that wax and wane,
For which we waste our breath;
Love only doth not wane and is not vain,
Love only outlives death.

A singing lark rose toward the sky,
Circling he sang amain;
He sang, a speck scarce visible sky-high,
And then he sank again.

A second like a sunlit spark
Flashed singing up his track;
But never overtook that foremost lark,
And songless fluttered back.

A hovering melody of birds
Haunted the air above;
They clearly sang contentment without words,
And youth and joy and love.

O silvery weeping willow tree
With all leaves shivering,
Have you no purpose but to shadow me
Beside this rippled spring?

On this first fleeting day of Spring,
For Winter is gone by,
And every bird on every quivering wing
Floats in a sunny sky;

On this first Summer-like soft day,
While sunshine steeps the air,
And every cloud has gat itself away,
And birds sing everywhere.

Have you no purpose in the world
But thus to shadow me
With all your tender drooping twigs unfurled,
O weeping willow tree?

With all your tremulous leaves outspread
Betwixt me and the sun,
While here I loiter on a mossy bed
With half my work undone;

My work undone, that should be done
At once with all my might;
For after the long day and lingering sun
Comes the unworking night.

This day is lapsing on its way,
Is lapsing out of sight;
And after all the chances of the day
Comes the resourceless night.

The weeping willow shook its head
And stretched its shadow long;
The west grew crimson, the sun smoldered red,
The birds forbore a song.

Slow wind sighed through the willow leaves,
The ripple made a moan,
The world drooped murmuring like a thing that grieves;
And then I felt alone.

I rose to go, and felt the chill,
And shivered as I went;
Yet shivering wondered, and I wonder still,
What more that willow meant;

That silvery weeping willow tree
With all leaves shivering,
Which spent one long day overshadowing me
Beside a spring in Spring.


Wednesday, 29 December 2010

Edwards Syndrome - Trisomy 18

Doc phoned us today - a day early - with bad news. It's Trisomy 18, aka Edwards syndrome. My partner and I had already covered all eventualities and agreed that the only diagnosis that would lead to termination was this one. In a way it's kind of odd that we had already talked about this possibility since Edwards syndrome is quite rare - only 1 in 3000 conceptions and 1 in 6000 live births. 

I'm still in shock... A small voice is whispering 'What if they got it wrong?'... but then my intuition at the last scan was that the baby wasn't going to make it. The edema is covering the whole body. We're seeing the specialist again on Friday to discuss our options, but I've decided that the most merciful route is termination ASAP. That said... do I have it in me? I'm scared.

This is not a journey I ever expected to be on. How we take things for granted... Three healthy children, no miscarriages and you think you're immune to this stuff.  


It is a girl, by the way. I wanted to know. My dreams were right. Apparently girls have a slightly higher chance of making it to live birth, but even then most die within the first few days. Their short lives are sheer agony as pretty much nothing works the way it is supposed to. Forgive me, but I'm not prepared to allow that kind of suffering. Also, I feel that this baby wouldn't make it to live birth anyway since it already has hydrops fetalis.

Saturday, 25 December 2010

CVS

Christmas Eve morning - driving up the A1 to the big hospital

Yesterday, on the morning of Christmas Eve, my partner and I set off for the big city hospital that our specialist had referred us to for the CVS. This is a biopsy of the placenta in order to determine if the fetus has any chromosonal abnormality.

The biopsy is done with an ultrasound scan and I was able to watch the procedure under local anasthetic. It wasn't painful. However seeing the worsened condition of Beanie and how the edema had spread througout its tiny little body brought me to tears.

I was able to hold it together thanks to the support of my partner, but his heart sank as well when he saw the scan images. The doctor paused mid scan to allow us to digest the information and allow for questions. My only question was if there was any hope at all. I had never read any accounts of the fetus surviving once the edema had spread like this, but she assured me that it was still possible.

For my own sanity, I decided to stop hoping then and there. I still love my little beanie, but the odds just aren't there. Hope is a luxury I can't afford in the case of the most likely outcome here.

Now we have to wait until Thursday next week for the preliminary results and then another week after that for the full test results. Around the time of getting the full test results we should be seeing the specialist at our local hospital again for another scan. I see it as going through the motions... detaching as much as I can.

The first scan at 12+1 showed a cystic hygroma of 6.7 mm. The next day, the hygroma had grown another mm and there was liquid around the abdomen. A week later (yesterday 13+1) the edema covered the whole body. I believe we're losing beanie in spite of so many people praying for us and sending beanie healing, and in spite of the glimmer of hope held out to us by the doctor who performed the CVS.



The staff at the big hospital were ever so nice. I found the whole experience rather comforting - especially compared to previous experiences where I've had to entrust my own health in the hands of health care professionals. These people genuinely care. Perhaps it goes with the territory. People who enter the field of fetal medicine probably have a genuine fascination with life and helping it blossom.

I also believe we'll be able to cope much better thanks to everyone's loving thoughts... but right now I'm in limbo. I've decided to like it here. It's grey and quiet.

Friday, 17 December 2010

Specialist's Opinion

Yesterday was my 12 week dating scan that my partner and I both had looked forward to so much, fully expecting everything to be alright and rejoicing so very much at the thought of seeing our Beanie for the first time. I blogged about the bad news we received in yesterday's post, and we've now been to the Friarage hospital in Northallerton to see the specialist we were so urgently referred to.

Last night, I managed to drift off peacefully with thougths of the lovely support, healing and prayers that are being sent up on behalf of Beanie, and I felt quite hopeful as we set off for the hospital this morning. I wanted to feel my grandmothers with me, so I wore a bracelet from them each for ancestral support. The antique silver bracelet is an heirloom from my maternal grandmother and the Sami leather and beadwork bracelet was made by my paternal grandmother.


The scan images were a lot clearer on the hospital monitor and we were able to get a clear view of our beautiful Beanie. Apart from the fluid, the fetus looks absolutely perfect, and the heart looks strong and healthy as far as the specialist doctor was able to tell.

Unfortunately, the nuchal swelling looked even worse today and measured well over 7 mm. There was also discernable swelling around Beanie's abdomen.

But all I saw was a beautiful, and healthy-looking baby... and I'm guessing that is why I pulled the Star card as my card of the day (a friend also pulled the Star for Beanie this morning). Even when the doctor told us that there is a 60% risk of chromosone damage with this type of cystic hygroma, and that even if it turns out to be chromosonally normal, chances are there is some other severe abnormality connected with the hygroma, I kept thinking Beanie is alright.

The next step on this journey is to have a Chorionic villus sampling (CVS), scheduled to take place on Christmas Eve. Normally, I would get the test results back in two days, but now I'm having to wait until the following Wednesday.

If the CVS comes back negative for chromosonal abnormality, we wait until the week 16 scan when the specialist will be able to check the fetus for other possible abnormalities that aren't covered by the CVS. By then we should know enough to make a decision whether to terminate or continue the pregnancy. I will trust my own inner guidance above that of the doctors when making the final decision though. In my experience, they are quite often wrong.

A big heartfelt THANK YOU to all of you who are praying for us and sending healing to Beanie. Your loving support means more than you'll ever know!

Thursday, 16 December 2010

When things go wrong...

Beanie 11 weeks + 6 days. Swelling at back of neck not visible in this shot.

This wasn't supposed to happen. Not to me. Not to Beanie. Not because it couldn't happen to me. I'm more a 'Why not me?' than a 'Why me?' person, but I had a dream last night about a beautiful baby girl who puckered up to kiss me... and so I completely trusted the 12 week scan to be perfectly fine and normal.

It wasn't. They found a swelling at the back of Beanie's neck and it is massive compared to the size of Beanie - 6.6 mm. I saw it plain as day and I knew straight away that something was wrong.

Also, it is not a good sign when the nurse won't take your money for the scan image.

I was sent to see a doctor straight away, and he managed to pull some strings for me and my partner to go see a specialist in Northallerton tomorrow.

They suspect Down's syndrome but I won't know anything until after all the tests are done.

I cried as soon as I saw 'the bubble' - ignorance is bliss sometimes. Even when the nurse told me that it can sometimes be normalised by itself, I knew it would take a miracle to shift a swelling that big. And so I'm hoping for a miracle. Miracles happen - I've seen them up close.

Many of my friends believe in miracles too and they are all praying for me and Beanie. In the meantime I shall try not to worry.

Beanie, I love you. You know that. No matter what happens.